{"id":31184,"date":"2025-12-22T14:00:58","date_gmt":"2025-12-22T13:00:58","guid":{"rendered":"https:\/\/junge-erwachsene-mit-krebs.de\/?page_id=31184"},"modified":"2026-02-16T07:47:05","modified_gmt":"2026-02-16T06:47:05","slug":"right-to-be-forgotten","status":"publish","type":"page","link":"https:\/\/junge-erwachsene-mit-krebs.de\/en\/right-to-be-forgotten\/","title":{"rendered":"Right\u00a0to\u00a0Be\u00a0Forgotten\u00a0"},"content":{"rendered":"\n    <div id=\"contenttextblock-block_0c47a034020f08f1f76e3d13740fe54c\" class=\"contenttextblock_container alignfull no_introtext normal\">\n      <div class=\"main_content\">\n                <div class=\"contenttextblock_content\"><h3 class=\"p1\">Life After Cancer \u2014 Facing New Challenges<\/h3>\n<p class=\"p1\">Young adults who survive cancer often achieve long-term remission, but many continue to face discrimination long after treatment ends. This can affect everyday life in significant ways: securing insurance or loans, pursuing careers in the civil service, or even starting a family can be made more difficult simply because of a past diagnosis. Despite being medically healthy, survivors are often treated as \u201crisk patients,\u201d creating barriers to full participation in work and social life.<\/p>\n<p class=\"p1\">In Germany, around 16,500 young adults aged 18 to 39 are diagnosed with cancer each year, and approximately 2,100 children. Thanks to modern treatments, more than 80\u202f% survive long term, yet survival alone does not guarantee equal opportunities. For survivors, the challenge is not only to recover physically but also to regain full social and professional participation.<\/p>\n<\/div>\n      <\/div>\n    <\/div>\n\n\n<div class=\"accordion-block-container accordion-block_a6366af330f953b7d6f4379b1eec199e\">\n          <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_a6366af330f953b7d6f4379b1eec199e accordion\">Right To Be Forgotten: Meaning<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">The Right To Be Forgotten ensures that, after a reasonable period of remission, a past cancer diagnosis cannot be used to the disadvantage of survivors. This includes decisions around insurance, credit, employment, and adoption. The aim is to give survivors the same opportunities as people who have never had cancer.<\/p>\n<p class=\"p1\">In 2023, the EU Consumer Credit Directive (2023\/2225) introduced a legal requirement for EU member states to prevent the use of personal health data in consumer credit decisions after a defined period. Germany must implement this by November 2025. While this is an important step, current national provisions remain limited and inconsistent, leaving many young survivors still disadvantaged.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t        <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_a6366af330f953b7d6f4379b1eec199e accordion\">International Context<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">Several EU countries,<span class=\"Apple-converted-space\">\u00a0 <\/span>including Belgium, France, Italy, the Netherlands, Portugal, Romania, Spain, Cyprus, and Slovenia, <strong><a href=\"https:\/\/endingdiscrimination-cancersurvivors.eu\/national-level\/\">have already implemented broader protections<\/a><\/strong> for cancer survivors. Some have also introduced voluntary codes of conduct for insurance companies, ensuring fair treatment. Germany, by contrast, still lacks comprehensive legal safeguards, leaving young adults vulnerable to discrimination.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t        <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_a6366af330f953b7d6f4379b1eec199e accordion\">Testimonies of young survivors<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">Survivors\u2019 experiences highlight the ongoing challenges:<\/p>\n<blockquote>\n<p class=\"p1\">\u201cI am cancer-free and medically fully healthy for 20 years. Yet to this day I experience disadvantages because of my medical history. When I turned 18, I wanted to change my private health insurance as part of my dual studies, but due to my medical history this was only possible at excessively high contributions, which were effectively unaffordable. Even professionally, my earlier illness had far-reaching consequences. Access to my desired profession, one I had pursued since childhood, was denied despite 13 years having passed since my illness, no recurrence, and continuous confirmation of my good health.\u201d<\/p>\n<\/blockquote>\n<p class=\"p1\"><strong>Bianca, first diagnosed in 2005, now 35 years old<\/strong><\/p>\n<blockquote>\n<p class=\"p1\">\u201cMy husband and I wanted to build a house. To secure the loan, I tried to take out a risk life insurance policy. Because of my leukemia, which was almost 12 years in the past, I was told that taking out such a policy was impossible.\u201d<\/p>\n<\/blockquote>\n<p class=\"p1\"><strong>Miriam, first diagnosed in 2011, now 34 years old<\/strong><\/p>\n<blockquote>\n<p class=\"p1\">\u201cAlthough I have a doctorate, am very active in sport and lead an unrestricted life, I still have great difficulty securing income protection insurance. All my attempts to make anonymous preliminary enquiries with my diagnosis have been rejected.\u201d<\/p>\n<\/blockquote>\n<p class=\"p1\"><strong>Stefan, first diagnosed in 2013, now 36 years old<\/strong><\/p>\n<p class=\"p1\">These accounts clearly show that discrimination is systemic. It affects survivors\u2019 financial security, career opportunities, and personal life long after successful treatment.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t        <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_a6366af330f953b7d6f4379b1eec199e accordion\">The Foundation\u2019s Work<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">Since 2022, the German Foundation for Young Adults with Cancer has been campaigning actively for a Right To Be Forgotten. Our activities include public education, policy advocacy, research, and raising of awareness in the general public.<\/p>\n<p class=\"p1\">Key activities include:<\/p>\n<ul>\n<li><strong>February 2026: <a href=\"https:\/\/junge-erwachsene-mit-krebs.de\/zum-weltkrebstag-auf-die-medizinische-heilung-folgt-oft-gesellschaftliche-diskriminierung\/\">Press Release<\/a><\/strong>(in German) about Right to be Forgotten for World Cancer Day<\/li>\n<li><strong>January 2026: <\/strong>Meeting with Susanne Hierl (CDU), member of the German Parliament as well as representatives of Survivor Germany and the foundation for children with cancer (Kinderkrebsstiftung)<\/li>\n<li class=\"p1\"><strong>July 2025:<\/strong> <strong><a href=\"https:\/\/junge-erwachsene-mit-krebs.de\/eu-verbraucherkreditrichtlinie-dgho-und-stiftung-fordern-kuerzere-frist-fuer-das-recht-auf-vergessenwerden\/\">Joint position<\/a><\/strong> (in German) with the DGHO on the draft law for implementing Directive (EU) 2023\/2225.<\/li>\n<li class=\"p1\"><strong>February 2025:<\/strong> <strong><a href=\"https:\/\/junge-erwachsene-mit-krebs.de\/forderungen-der-deutschen-stiftung-fuer-junge-erwachsene-mit-krebs-zur-bundestagswahl-2025\/\">Publication of official demands to the Federal Government<\/a><\/strong> (in German) for national implementation of the Right To Be Forgotten.<\/li>\n<li class=\"p1\"><strong>September 2024: <a href=\"https:\/\/junge-erwachsene-mit-krebs.de\/recht-auf-vergessenwerden-neue-publikation-zu-benachteiligungen-von-jungen-krebspatientinnen\/\">Joint press conference<\/a><\/strong> (in German) with the DGHO presenting the 22nd volume of the health policy series Right To Be Forgotten \u2013 Ending Discrimination Against Young Adults with Cancer.<\/li>\n<li class=\"p1\"><strong>August 2024:<\/strong> Meeting with the German Insurance Association (GDV) to propose defining the start of the Right To Be Forgotten based on a five-year remission period.<\/li>\n<li class=\"p1\"><strong>June 2024:<\/strong> Satellite symposium at the Berlin Health Policy Congress on the Right To Be Forgotten.<\/li>\n<li class=\"p1\"><strong>2023:<\/strong> Online survey collecting over 250 documented cases of discrimination.<\/li>\n<li class=\"p1\"><strong>April\u2013December 2022: <a href=\"https:\/\/junge-erwachsene-mit-krebs.de\/initiative-im-europaeischen-parlament-gegen-benachteiligung-junger-krebspatientinnen-bei-krediten\/\">Press releases<\/a><\/strong> (in German) highlighting the need for a Right To Be Forgotten and the situation in other EU countries.<\/li>\n<\/ul>\n<p class=\"p1\">The Foundation also maintains ongoing dialogue with political decision-makers and institutions, including members of the German Bundestag, the Federal Anti-Discrimination Agency, and international partners such as <strong><a href=\"https:\/\/endingdiscrimination-cancersurvivors.eu\/national-level\/\">Ending Discrimination Against Cancer Survivors<\/a><\/strong> and <strong><a href=\"https:\/\/survivordeutschland.de\/im-fokus\/im-fokus-survivor-deutschland-e-v-wir-sind-ein-verein\/\">Survivor Deutschland.<\/a><\/strong><\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t        <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_a6366af330f953b7d6f4379b1eec199e accordion\">Our Demands<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">The Foundation calls for:<\/p>\n<ol>\n<li class=\"p1\">A legally binding Right To Be Forgotten in Germany, allowing survivors to move on without discrimination after a defined remission period <em>(we recommend five years).<\/em><\/li>\n<li class=\"p1\">Broad legal coverage, ensuring protections apply across insurance, credit, employment, and adoption.<\/li>\n<li class=\"p1\">Increased awareness and destigmatisation, so that young survivors are not treated as lifelong <em>\u201crisk patients.\u201d<\/em><\/li>\n<\/ol>\n<p class=\"p1\">Every young adult who survives cancer should be able to live, work, and plan their future on equal terms with their peers.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":19,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"give_campaign_id":0,"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"","neve_meta_content_width":0,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","neve_meta_reading_time":"","footnotes":""},"class_list":["post-31184","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - 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