{"id":8461,"date":"2019-02-19T16:03:01","date_gmt":"2019-02-19T15:03:01","guid":{"rendered":"https:\/\/junge-erwachsene-mit-krebs.de\/wir-bewegen\/"},"modified":"2025-12-30T12:09:32","modified_gmt":"2025-12-30T11:09:32","slug":"moving-forward","status":"publish","type":"page","link":"https:\/\/junge-erwachsene-mit-krebs.de\/en\/moving-forward\/","title":{"rendered":"Advocacy\u00a0&amp; Research"},"content":{"rendered":"\n    <div id=\"contenttextblock-block_cd28c4ce762e5358bf723bffda7a95fc\" class=\"contenttextblock_container alignfull no_introtext normal\">\n      <div class=\"main_content\">\n                <div class=\"contenttextblock_content\"><p class=\"p1\">The German Foundation for Young Adults with Cancer works closely with patients and policymakers to improve and strengthen comprehensive care structures and enhance long-term support for young adults affected by cancer. Our advocacy and research initiatives emphasise specific medical, social, and financial challenges faced by this group.<\/p>\n<p class=\"p1\">To address these challenges, we focus on several key areas where young adults experience the greatest impact: their rights as survivors, fertility and reproductive health, and financial and social support.<\/p>\n<\/div>\n      <\/div>\n    <\/div>\n\n\n<div class=\"accordion-block-container accordion-block_b30c4058d0fea0146ec2f0dae73ea8dc\">\n          <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_b30c4058d0fea0146ec2f0dae73ea8dc accordion\">Right To Be Forgotten<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">Many young adults who have survived cancer face ongoing discrimination long after their treatment is complete \u2014 for example when applying for insurance, taking out credit, seeking civil service positions or starting a family. Although more than 80\u202f% of young adults with cancer become longterm survivors, they are still treated as \u201crisk patients\u201d in everyday life, which can limit their participation in work, finances and social life.<\/p>\n<p class=\"p1\">The Right To Be Forgotten aims to ensure that a past cancer diagnosis is no longer used against someone after a reasonable period of time without recurrence, so that survivors have the same opportunities as people who have never had cancer. Under the EU Consumer Credit Directive 2023, member states must implement rules preventing the use of health data for certain insurance and credit decisions after a defined period, but implementation in Germany is currently limited.<\/p>\n<p class=\"p1\">The German Foundation for Young Adults with Cancer has been actively campaigning on this issue since 2022, raising awareness, engaging with policymakers and health stakeholders, and publishing official demands for comprehensive legislation that would guarantee a right to be forgotten in insurance, credit, employment and family law. We believe this right should apply after a defined healing period and eliminate discrimination against young cancer survivors.<\/p>\n<p class=\"p1\">For a full overview of our campaign around the Right To Be Forgotten and detailed information, please see the <a href=\"https:\/\/junge-erwachsene-mit-krebs.de\/en\/right-to-be-forgotten\/\">dedicated campaign page<\/a>.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t        <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_b30c4058d0fea0146ec2f0dae73ea8dc accordion\">Fertility and Reproductive Rights<\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">Fertility is a central concern for many young adults diagnosed with cancer. Treatments such as chemotherapy or radiotherapy can threaten reproductive capacity, affecting future family planning. Ensuring access to fertility preservation is therefore a critical part of supporting young adults\u2019 quality of life and long-term wellbeing.<\/p>\n<p class=\"p1\">The German Foundation for Young Adults with Cancer has campaigned for years to make fertility preservation accessible and affordable. Thanks in part to the Foundation\u2019s advocacy, key legislative achievements were realised:<\/p>\n<p style=\"padding-left: 40px;\">\u2022 Coverage of costs of fertility preservation under \u00a727a SGB V (since May 2019) by public health insurances for patients whose fertility is at risk from chemo-, radio- or other therapy.<\/p>\n<p style=\"padding-left: 40px;\">\u2022 Cryopreservation of sperm, testicular tissue, unfertilised eggs (from 1 July 2021) and ovarian tissue (from 1 July 2023)<\/p>\n<p class=\"p1\">Remaining challenges:<\/p>\n<p style=\"padding-left: 40px;\">\u2022 Costs of egg-stimulation medication for girls under 18 are not covered.<\/p>\n<p style=\"padding-left: 40px;\">\u2022 Storage costs at cryobanks cannot always be billed to statutory health insurance.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t        <div class=\"accordion-block\">\n      \t\t<button class=\"accordion-block_b30c4058d0fea0146ec2f0dae73ea8dc accordion\">Financial and Social Support <\/button>\n      \t\t<div class=\"panel\">\n      \t\t  <p class=\"p1\">Young adults diagnosed with cancer often face significant financial and social challenges. Treatments can interrupt education or careers, limit income, and create additional expenses for medical care and daily living. These pressures add stress at a time when patients are already coping with a life-changing diagnosis, making targeted support essential for wellbeing and recovery.<\/p>\n<p class=\"p1\">The Foundation advocates for measures to reduce these burdens, including:<\/p>\n<p style=\"padding-left: 40px;\">\u2022 Exemption or deferral of additional payments for up to six months (in line with the regulation for patients with chronic diseases).<\/p>\n<p style=\"padding-left: 40px;\">\u2022 Flexible bridging payments for those without access to sick pay, such as students, delivered with minimal bureaucracy.<\/p>\n<p class=\"p1\">By addressing these financial and social barriers, we aim to help young adults focus on their treatment and long-term recovery without the added strain of economic hardship.<\/p>\n      \t\t<\/div>\n        <\/div>\n    \t\t<\/div>\n\n\n\n    <div id=\"contenttextblock-block_a0b97a855d730eab8e709addeb4609ad\" class=\"contenttextblock_container alignfull no_introtext normal\">\n      <div class=\"main_content\">\n                <div class=\"contenttextblock_content\"><h3 class=\"p1\">Research Fellowships<\/h3>\n<p>Every year, the German Foundation for Young Adults with Cancer awards research scholarships dedicated to advancing knowledge in the field of cancer in young adults as well as promoting evidence-based improvements in care and support.<\/p>\n<p>The greant is aimed at researchers from various disciplines (e.g. medicine, natural sciences, psychology, sociology, social sciences, cultural or communication sciences, law) who are specifically working on issues related to the topic of Young &amp; Cancer.<\/p>\n<p class=\"p1\">\n<\/div>\n      <\/div>\n    <\/div>\n\n\n<div class=\"boxoverview-block-container boxoverview-block_f32d3eb1c1acb4a2b2c1b706b23ed152  alignfull\">\n  <div class=\"boxoverview-area\">\n        <div class=\"boxoverview_verlinkungscontainer\">          <div class=\"boxoverview-block\">\n                    \t\t<div class=\"boxoverview-block_f32d3eb1c1acb4a2b2c1b706b23ed152 boxoverview no_symbol\">Right To Be Forgotten<\/div>\n        \t\t<div class=\"boxoverview_content\">Find out more about our ongoing campaign.<\/div>\n                            <a class=\"content_link\" href=\"https:\/\/junge-erwachsene-mit-krebs.de\/en\/right-to-be-forgotten\/\" target=\"\">Read more<\/a>\n                          <\/div>\n      \t\t    <\/div>\n      <\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":5,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"template-uebersicht.php","meta":{"_acf_changed":false,"give_campaign_id":0,"neve_meta_sidebar":"","neve_meta_container":"","neve_meta_enable_content_width":"","neve_meta_content_width":0,"neve_meta_title_alignment":"","neve_meta_author_avatar":"","neve_post_elements_order":"","neve_meta_disable_header":"","neve_meta_disable_footer":"","neve_meta_disable_title":"","neve_meta_reading_time":"","footnotes":""},"class_list":["post-8461","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Advocacy\u00a0&amp; 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